Harrison County Girl With Rare Disease Will Progressively Go Blind

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Emma Griffith,9, is a happy, healthy third grader. She likes playing outside with her sister and even doing her homework. From the outside looking into Emma’s big green eyes you’d never know she can barely see what’s right in front of her.

“She can not see much at all, unless it’s right in front of her, even with her glasses because her eyes are so bad. Getting around the house she is counting steps to get from place to place of course, she can’t see anything in the dark,” said Linda Griffith, Emma’s mother.

Emma has retinitis pigmentosa or R.P.- a rare disease that progressively deteriorates the retina until she becomes legally blind. Everything affects her eyes, from sunlight to bright indoor lights…but that hasn’t dampened Emma’s spirit.

“She’s high spirited. She just takes everything in stride. Look at her she’s walking around out here but then again the eyes it does get frustrating,” said Linda.

Emma is learning everyday how to adjust to her new way of life.

“This is a brail type writer. It does brail, which is pretty neat! It only has six keys,” said Emma Griffith.

With her sister’s support, they are learning brail together.

“I love my sister she thought me s, a and r, I don’t know h and every time she learns a new letter, she helps me learn too!” said Sarah Griffith.

The painful reality right now is that Emma may be blind within the next year and there are many things she will never get to see.

Linda said, “It’s sad. It’s very sad, because look at all of these pretty things out here. She is not going to be able to see that much longer. It makes me want to cry but Emma just takes it with a grain of salt and she’s coping better than we are.”

With help from the Rebecca Lodge, Emma’s family is raising money to make her dream come true of traveling to Disney World this June.

“This is our last hope and chance for that to happen before she loses her sight completely.”

All month long a fundraiser is set up at the Texas Road House on Emily Drive in Clarksburg. Lunch Boxes can be purchased for 10 dollars.

To make a donation you can mail a check to the Rebecca Lodge at 602 Highland Street in Shinnston or call (304)-641-9300.

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