WEBSTER SPRINGS, W.Va. – Webster Memorial EMS Paramedic, Dan Moran, travels around Webster County as part of his job. But, he also travels regularly much farther away, for destinations like Weston and Columbus, among others. That’s because his daughter is one of the one in 10,000 people with Williams syndrome, a rare genetic condition.
“It’s randomly occurring. It can occur in any person, doesn’t make any difference, age, sex or location, anything like that. My daughter was diagnosed at 18 months with Williams syndrome, so it’s been important to me and my family to get the information out,” said Moran.
So to bring awareness to his daughter’s condition, Moran teamed up with the EMS to wear new uniform shirts for the month of May, highlighting the disease. It’s a condition that causes global developmental delays, which means his family will have a lot to do.
“They vary, but most kids usually have to have some kind of support as they become an adult. They generally are not able to live an independent life, although a few are able to. For us, it means starting very early, as soon as you understand this, to try and get her to be as independent as possible when she becomes an adult,” Moran said.
The EMS crew travels around the state with regularity, so Moran’s shirts have been seen from Morgantown to Charleston. He said he wants people to learn more about Williams syndrome, as well as the range of other conditions families deal with around the country.
“There are so many different genetic conditions out there, and each one’s unique, each one’s different. Each one requires a different understanding and different treatment for each person,” said Moran.